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Mayo Ups and Downs

4/9/17 After church, I took a walk outside in the 78 degree day. It was plenty windy, but it was so nice to have a super warm day. It has been in the 50’s and will be again all week. We got two days in the 70’s Saturday and Sunday. By 3:00 Jayden and I were on the road headed to Rochester Mn for Jayden’s Monday morning appointments. Mark stayed home with the boys and took advantage of the nice day working hard on the horse lots. He took the skid loader and cleaned out the muck mud and manure. It was hard work and a lot of shoveling. He also brought rock in to put around the feeders in hopes of preventing all the mud and wetness every time it rains.
Te trip to Minnesota was a bit of an adventure. We picked Mawgee up to go along on the drive. When we got to her house, Jayden wanted to drive the next stretch. We were near Albert Lee, MN when the Tahoe chugged and sputtered as we lost power on the side of the interstate. We were out of gas. I knew we needed to get gas, but not being the driver,  I was not paying attention, I was also in the back seat. Jayden claimed she did not see a light or hear any dinging which both happen when the tank get low. Thankfully we had AAA to help us out. We sat outside for 45 minutes in the ditch near the road. It was a nice day to be outside, so it wasnt so bad. A tow truck came and gave us a couple gallons. We had a few laughs and Grandma was entertained. I think this was a learning lesson for Jayden to keep an eye on the gas gauge. WE decided to keep this little occurrence to ourselves until one day when Dad is reading this. We stopped to eat at a Perkins that was very slow. As we traveled we were heading into a storm. We could see the clouds and the lightning were getting sharper and closer. I really didn’t want to drive into it, so we pulled off and waited a bit. Fortunately we did miss the worst of the storm and got to our hotel at 9:30. Our plan was to be there by 7.We had quite a trip up with many laughs.
Monday morning we started with appointments at 8:30. Jayden was injected with a dye for a bone scan. She met with a GI doctor and a Rheumatologist. They had contradicting ideas. The bone scan showed a very small possible inflammatory bone lesion. Because of that, she will need to schedule an MRI and a CAT scan. In addition the doctors wanted her to have an esophageal scope and a colonoscopy. In reading the information from the doctors, it looks to be one of two things, both have a long term treatment of anti inflammatory pills. Basically ibuprofen which she takes for pain now. That made me frustrated and wondering why so many tests and more trips to mayo if the treatment is ibuprofen anyway. However, this lesion or spot that shows up in the bone scan is concerning and I want to make sure it is not more serious. The scopes are looking at her GI system will explain why she has such high readings on her labs for inflammation. I am praying that she will be fine,  nothing serious going on. We just want Jayden to feel better and to live a normal life of a teenager. When it came time for scheduling the upcoming appointments, I could feel the anxiety setting in again.
There are two many appointments and too many trips. We have made 3 already and now more. Each test ends up with more appointments and follow ups. I feel like we are stuck in this cycle and our lives are being affected. I have to stop and think of those people that have children with serious life threatening or debilitating problems and have to make multiple appointments for all kinds of treatments like chemo and radiation. We are so fortunate and I can be thankful that we are not dealing with something more serious. I was stressed about all the appointments and they had an MRI scheduled for 6 am the next morning. I cancelled it and said we would just do it when we have to come up next. While I called Mark and was waiting for the shuttle, I realized it was already closing in on 5:00, so why not just stay another night, By the time I took the elevator back to the 16th floor and told them we could stay for the 6AM appointment, it was 5:01, the receptionist called the radiology department at 5:03 and they quit answering the phones. Go figure! This certainly did not help with my frustrations and anxiety. I was fuming inside and just wanted to go home. After I had a chance to calm down, we headed south towards home. More frustrations when the soccer coach called to tell me Luke was told by Grandpa (Orrie) to go to his friends house after soccer. I felt awful that Luke went to his friends house uninvited and to make matters worse his mom was sick and he was there a couple hours. More anger and upset. I will pray for a clear mind and help in controlling my anxiety, frustrations, and anger. But most important I will pray for Jayden's health.


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